Demanding the right to choose

'It was so totally undignified what she was enduring. She wanted it to end.”

The tears well as Avice Jacobson shares the wretched ordeal of an aged aunt – 99-years-old, suffering terminal cervical cancer, bed-ridden and according to Avice wanted to be released from the pain, suffering and loneliness.


Avice Jacobson. Photo: Tracy Hardy.

'I feel so angry.” The tears she has been holding back begin to flow freely. 'It's was just horrible, just awful.”

Avice says her aunt, despite her illness, had her wits about her. She was smart enough to be making decisions about her life, whether she wanted to live or not.

'She told me she had had enough of the pain and wanted someone to help her end her life peacefully.”

That someone was her doctor.

'He refused,” says Avice. 'He said, ‘No, I can't do that'.”

So she took what she believed to be her only other option.

'To starve – she refused food and drink.” Avice says her aunt was slowly committing suicide. 'Why does the law allow this?” she asks.

Avice is telling this story as a backdrop to her submission to the Health Select Committee, which will investigate euthanasia in New Zealand.

The investigation's prompted by former MP Maryan Street's petition to investigate 'public attitudes towards the introduction of legislation which would permit medically assisted dying in the event of a terminal illness or an irreversible condition which makes life unbearable”. Submissions on one of the great issues of our time closed this week.

Avice's submission is blunt, business-like and all about choice.

'If I become terminally ill and suffer pain, severe stress and loss of dignity then I believe it is my human right to ask for the means by which I can peacefully terminate my life.”

'End of life choice is something I have thought about for many years and I think it is time for a law change. It is time to become a truly humane society.”

Just before Christmas and days before her 99th birthday, Avice's aunt started taking tea again. Then she died.

'I hear about people who are cruel to their animals and then they are prosecuted. But it's OK to do that to those who are dearest to us” says Avice.

And when it's her turn, this considered, healthy and spritely octogenarian wants the right to say 'now my time has come”.

It might not be at the ultimate terminal state, but a month or so earlier. 'I would want my family around me, we would celebrate what we have, then say goodbye and go.” Quietly, painlessly and with dignity.

'My aunt was deprived of that respect.”

But Avice is demanding that respect for herself. 'It should also be my right to say no, I have changed my mind. I will put up with this for the next few days because the sky is so beautifully blue and I want to look at it.”

But if the sky darkens, if the clouds roll in, Avice is ready. As far as anyone can legally be ready.

'I have an advance directive with my doctor which says I don't want to be kept alive or resuscitated in a life-threatening situation. And I have asked for all the drugs possible if I am in pain, even if it hastens my death.”

Her family agrees. They have said whatever makes her happy. 'They wouldn't care. They would say, ‘It's your life Mum'.”

If Avice sounds like someone with a death wish, someone approaching their time, think again.

As we're talking about 30 or 40 cruise liner tourists cycle by the Sun Media office on the Strand. She waves them down, chats them and announces she is going to buy one of the small-wheeled bicycles.

'I just want people to put aside the emotion and nonsense. It's about personal choice. Plain and simple.”

Avice says there are powerful lobby groups at play in this debate. 'And I hope everyone has made their feelings known. I hope they will make a difference. Make a change.”

The chair of the select committee is National MP Simon O'Connor, who is opposed to voluntary euthanasia because 'I don't support the killing of another human being”.

Opponents say any change to the law to assist a handful of people would be 'the thin end of the wedge”.

However Act leader David Seymour has pushed the issue to another level championing a member's bill based on Maryan Street's earlier legislation. It would allow mentally competent adults who have a terminal illness likely to end their life within six months, or have a grievous and irremediable medical condition, the choice to have a doctor help end their life at the time of their choosing.

The other middle of the road option is for New Zealand not to be a leader on the issue but wait and see if other similar countries such as Australia and Britain opt for a law change.

Government officials will now process the hundreds of submissions to the health select committee, hear some submitters and then make recommendations, perhaps including that the Government consider law changes.

You may also like....

10 comments

agree

Posted on 29-01-2016 10:50 | By whatsinaname

My aunt was in same position. She asked for help and in the end refused to eat and drink. There was no hope of her recovering and was in pain 24/7. She had a long slow painfull death. Which could of been avoided.


Do we have the right to decide when we die.

Posted on 29-01-2016 11:32 | By Lizzie Bennet

Contrary to popular Darwinist belief we are not animals to be disposed of but Human Beings with a soul and a spirit. There are immutable laws which whether we like it or not means we should respect human life and treat it as something sacred. It is a slippery slope when it becomes a human right to commit suicide. I am confused by emotive stories of pain and suffering as any hospice nurse will tell you it is possible to manage end of life compassionately and with little pain. I know this post will anger some people but before you type please take time ti think about the precious gift that is life and do we really have the right whatever the cost to end it.


Avr

Posted on 29-01-2016 13:03 | By Anton

On one side it is sad,doctor can give you quantity of live ,but not quality of live. I have seen so many people suffering with at the end the dead.Why if you don,t really want to?


No understanding of the word RIGHTS

Posted on 29-01-2016 13:11 | By The Tomahawk Kid

Your Life is YOURS - not mine or Govts. You have no right to say what others do with their lives. The nation is suffering not knowing the meaning of the word. I ask the question WHY does a government get to say how or when we should be allowed to die? They chose not to be involved in the act that allows children to be brought INTO the world - why do they insist in having a say in how or when we can leave it? They allow and in fact ENCOURAGE irresponsible people to bring unwanted children into a world of abuse and suffering. My life is MY life - I will not have my individual rights taken from me by govt. I will end my own life (if I chose) even if I have to resort to amateur, dangerous and illegal methods to do so.


Ensure you suffer before you die.

Posted on 29-01-2016 13:40 | By dgk

A good friend of mine died from bone cancer. During his last couple of months he was so high on morphine that he had no idea what was happening around him. He didn't even recognise his wife of 40 years. Nurses had to look after all his bodily functions as the cancer had destroyed his ability to move (or maybe that was also the morphine). There was nothing sacred or precious about the horrific state he was in. But the law said he must suffer as long as possible until his heart finally gave up.


Suicide is legal.

Posted on 29-01-2016 13:51 | By dgk

Here in NZ it is %100 legal to commit suicide. However, it is illegal to help someone else commit suicide. Thus, a patient can refuse life saving medical attention....sometimes by simply not seeking medical assistance.


The Thin Edge of the Wedge

Posted on 29-01-2016 15:05 | By Chapsmate

Lizzie is quite correct. Humans have a soul & a spirit. I happen to believe it is given by God. The stories shown are one view of a very tragic situation. I believe such people can be a real blessing on family and friends,, as they visit to care for, comfort and benefit from the presence of their loved one. Often real pearls come from the lips of the dear people about to move on from this world of suffering. It is so easy for greedy, self-centred family members, more hungry for monetary gain, and too selfish to give their loved ones a little time before theyy die. That same loved one has given numerous days of time, which their offspring are often too selfish to reciprocate. I am happy to let God decide when my life is over.


@Lizzie Bennett

Posted on 29-01-2016 15:06 | By Colleen Spiro

You comment does not anger me, but those beliefs are YOURS.. When a beloved pet is hurt, we compassionately put them to sleep. When a racehorse breaks a leg, they are euthanized. I would love the opportunity to build a relationship with my doctor, and for the law to allow him to talk to me in the event of a terminal illness. We would decide together, when the time was right....And that would be when there is NO quality of life, and I choose to suffer no longer. That is MY CHOICE.....or I hope it will be in the future..It should be a choice now.


End of Life Choice

Posted on 29-01-2016 18:56 | By rosbo

I hope all these people with passionate views have made a submission to the Select Committee considering the Eutanasia Bill. If they haven't nobody will take any notice. Go to the Parliament website before Monday.


My Life, My Choice

Posted on 14-09-2016 11:27 | By Lively Ones

We as parents teach our kids to take responsibility for ourselves & actions,so why when you have a terminal illness etc that is stopping you from living a pain-free,quality-based & happy life does that responsibility get taken from us? We are not god,but would he want us to suffer? We don't let our pets suffer,yet it is ok to let humans suffer, well I don't think so.Most of us work hard for the best part of our lives,pay taxes for this county,raise a family,but then when in our golden years,when it is OUR time and something goes wrong we are made to suffer by the government who we put into power,who we helped to win the election,but now they turn their backs on us,they let us suffer.Change the law,give us a choice, our choice,not yours.


Leave a Comment


You must be logged in to make a comment.