Mykal’s life and Lego dream

Mykal Mayne, a 13-year old who suffers from Spastic Dystonic Quadriplegic Cerebral Palsy. He gets help and taken to school by support worker, Dave Holder who is also happy to be called Mykal’s good friend. Mykal’s love of Lego has started a fundraising ap

Mykal Mayne is a typical 13-year-old. He loves Star Wars, Lego and mucking around but he doesn't have the typical teen life.

The Papamoa teenager was born with spastic dystonic quadriplegic cerebral palsy – in short he's confined to a wheelchair for life and can't do anything for himself. Not even scratch his own nose.

So one of his support workers wants to give Mykal the trip of a lifetime – to Florida's Legoland in the United States.

'I've been lucky enough to have a lot of help from a lot of people to help achieve my dreams, so I'd love to help make Mykal's dream come true,” says Tauranga's David Holder, who is known to most as 2016's New Zealand Rally Champion.

But little would know that David – or Dave for short – met Mykal about 18 months ago, after a rally crash when looking for flexible work, becoming one of his employed support care workers.

Dave describes Mykal as infectious. 'He's pretty hilarious. He's got some pretty mean one-liners that come from nowhere.

'And at the end of the day he's just like any other 13-year-old kid. He loves Star Wars and Lego and all that sort of stuff. But obviously he has physical challenges to work through,” say Dave, stating that essentially Mykal can't do anything for himself.

On a normal day a support worker arrives for Mykal at 7am, gets him out of bed, to get changed and eat breakfast; then get's him into the taxi for school. There a teacher aid helps support Mykal during his school-day.

In the afternoon another support worker meets Mykal at home and helps with the usual teenage tasks such as homework and housework before some free time activities; more often than not Lego.

'If his whole life is going to be like this I figure what not create this once-in-a-lifetime experience for him – and hopefully I've got the means to make it happen,” says Dave.

When Mykal came up with an idea of creating a video to help fund Holder's rallying career, the 27-year-old was quick to twist it into raising funds to take the teen toLegoland and Florida.

Dave's now created a Givealittle page to help raise the $15,000 required for the overseas adventure.

'I want to take two support workers because it's pretty crucial with him being overseas; the travel makes it a bit more difficult than his normal activities,” says Dave.

He recently cared for Mykal on Saturday, having a sleepover, taking him to the movies, the beach and pools.

'Until last year, when I came on-board, I don't think Mykal had ever been in the sea just because I don't think there had been a support worker capable of it. It is very physically demanding task.”

Dave says Mykal has changed his outlook on life. 'It's the toughest job I've ever done. For the first three months I found it hard to have lunch. Because Mykal physically relies on you for everything so he sits and watches me eat lunch. You feel quite bad.

'Nowadays it's fine – and it helps me appreciate how blessed I am in life.”

Dave says some days he can't help but smile at the things Mykal says. 'Others you feel the impact of the quality of life he's got ahead of him. It breaks your heart a wee bit that he can't do the simplest of things.”

But one thing Mykal loves is Lego. He can talk and direct Dave on what to build and where.

'He can move his hands and shuffle through the Lego box but cannot build things. But he likes to envisage what to make and tell you where to put the bricks.”

Already Dave's main rally sponsor, Stadium Finance, has backed the cause and Dave's received support from local holiday specialists Trista and Lance Somervell at NZ Travel Brokers Tauranga. To get on board and donate, see: https://givealittle.co.nz/cause/makemykalsmiracle

The page closes 11.59pm on December 24. Dave hopes to tell Mykal at Christmas that he's heading to the US early next year.

Off to school in the specially equipped van. Photo: Chris Callinan

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